About

Immunodeficiency Patients Advocacy Association (IDPA)

Immunodeficiency Patients Advocacy Association (IDPA) is a non-governmental and non-profit organization that began its work in 2018 with the aim of supporting individuals living with primary immunodeficiency disorders. These conditions are rare, genetic diseases that impair the immune system, leading to recurrent infections, autoimmune complications, and even malignancies. Treating these patients is highly complex, costly, and requires continuous specialized care.
With the support of compassionate philanthropists, we strive to ease the burden on patients and their families by providing financial, emotional, and educational assistance. Our mission is to raise public awareness, facilitate early diagnosis and effective treatment, and ensure equitable access to specialized medical services for all affected individuals.
We hope that with your cooperation, we can take even a small yet meaningful step toward reducing the suffering of these patients and keeping the light of hope alive in the hearts of their families.

What is immunodeficiency?

The immune system plays a vital role in protecting us against various diseases such as infections, cancers, autoimmune disorders, allergies, and asthma.
Primary immunodeficiency diseases are inherited disorders caused by impaired functioning of the human immune system, and more than 500 types of these conditions have been identified to date. In our country, due to the high rate of consanguineous marriages, the prevalence of primary immunodeficiency diseases is expected to be higher than the global average.
When the immune system does not function properly, the body becomes unable to effectively combat microbes, viruses, and other pathogens. As a result, patients experience recurrent infections affecting different organs and systems such as the respiratory system, gastrointestinal tract, nervous system, joints, skin, and bones. In addition to recurrent infections, individuals with immunodeficiency are also at greater risk of developing various malignancies.

History

The history of supporting patients with immunodeficiency dates back to before 2006, when initial, intermittent efforts gradually took shape in the form of a charitable fund within the Immunology, Asthma and Allergy Research Institute. However, given the extremely high cost of treating immunodeficiency disorders and, in some cases, the need for stem cell transplantation—which itself requires substantial financial resources the necessity for a structured and goal-oriented organization to provide material and emotional support to immunodeficient patients became increasingly evident.
For this reason, the Immunodeficiency Patients Advocacy Association was formally established on 14 August 2018 under registration number 45305, with the support of a group of dedicated philanthropists, and began its activities.

Providing continuous support for patients with primary immunodeficiency in the areas of prevention, diagnosis, and treatment
Raising awareness among patients, related professionals, and the general public through accessible information and education
Improving the quality of life for patients and their families through training and efforts to provide diagnostic and treatment services
Empowering patients to better manage their condition and reduce its complications and long-term effects
Attracting volunteers, resources, and financial support from individuals, as well as governmental and non-governmental organizations
Encouraging public engagement and support to help increase access to diagnostic and therapeutic services for patients
Organizing seminars, gatherings, and educational workshops to advance the foundation’s mission and goals
Offering proposals and recommendations to relevant authorities, and providing consultations when referred to by official bodies

A leading authority in the field of primary immunodeficiency

To become a recognized national and regional authority in providing educational, diagnostic, and therapeutic support for patients with primary immunodeficiency.

With the goal of enhancing the quality of care for individuals with primary immunodeficiency, we strive to become a leading national and regional reference in the fields of education, diagnosis, and treatment. Our focus is on delivering specialized services, supporting families, and advancing knowledge in this field — aiming to provide a reliable and scientific foundation for the comprehensive care of these patients.

The mission of the foundation is to provide comprehensive and continuous support for individuals affected by primary immunodeficiency and related conditions, focusing on prevention, diagnosis, treatment, post-treatment care, and social support.

استفاده از کادر درمان متخصص

The use of a specialized medical team plays a vital role in accurate diagnosis, effective treatment, and faster patient recovery. Their expertise and experience ensure a more reliable treatment process and help minimize potential risks.

تشخیص به موقع و شروع درمان

Early detection and timely initiation of treatment have a significant impact on the recovery process. When a condition is identified at an early stage, treatment becomes simpler, faster, and more effective, reducing the likelihood of serious complications.